PWAStories

Living with albinism in Gabon: Dr. Stéphanie Ntsame Ngoua’s testimony and advocacy

In Libreville, dermatologist Dr. Stéphanie Ntsame Ngoua shares what it’s like to live with albinism in Gabon—and why prevention, information, and dignity can save lives. As president of ALBA, she works to reduce stigma and prevent skin cancer through awareness and screenings.

Peter Ogik’s Journey: Overcoming Stigma and Advocating for People with Albinism

Ugandan activist Peter Ogik, Executive Director of SNUPA, shares his journey from school bullying to advocacy for people with albinism. Through education, skin protection, economic empowerment and policy change, he works to ensure no child with albinism in Uganda endures the abuse he faced.

Laura: Guiding Children with Albinism to Thrive

Raising a child to independence is never simple—and for families navigating albinism, the challenges are uniquely complex. That’s why Laura Brodie, educator and advocate, created two initiatives—Adventures in Albinism and The Teacher’s Compass—to help parents and teachers build inclusive spaces where children with albinism can grow with confidence and thrive.