PWAStories

Peter Ogik’s Journey: Overcoming Stigma and Advocating for People with Albinism

Ugandan activist Peter Ogik, Executive Director of SNUPA, shares his journey from school bullying to advocacy for people with albinism. Through education, skin protection, economic empowerment and policy change, he works to ensure no child with albinism in Uganda endures the abuse he faced.

Laura: Guiding Children with Albinism to Thrive

Raising a child to independence is never simple—and for families navigating albinism, the challenges are uniquely complex. That’s why Laura Brodie, educator and advocate, created two initiatives—Adventures in Albinism and The Teacher’s Compass—to help parents and teachers build inclusive spaces where children with albinism can grow with confidence and thrive.

Living with Albinism Under a Burning Sun: ALSOA’s Mission in the Dominican Republic

An interview with ALSOA founder Pablo Delgado on building the Dominican Republic’s national albinism organization, connecting ~220 members out of an estimated 700–800, and living under UV indices of 11+ in a tropical climate.