Albinism Leaders in a photo from the GlobalSkin side meeting, spring 2025.
photo by Domink Kučera

The Global Albinism Alliance Works to Build a World Where People with Albinism Enjoy Dignity, Equality, and the Best Possible Quality of Life.


ABOUT THE GLOBAL ALBINISM ALLIANCE

We are a non-profit organization committed to the empowerment, protection, and equal rights of individuals with albinism worldwide. Recognizing the unique challenges these individuals often face, including discrimination, marginalization, and physical harm, we work to change societal attitudes and create a world where the albinism community can thrive. 

Our initiatives include global advocacy efforts, improving knowledge and helping albinism organizations around the world become stronger.

HISTORY OF THE GLOBAL ALBINISM ALLIANCE

1992

The first significant effort to formalize international collaboration was the creation of the Albinism World Alliance (AWA). While pioneering, this initiative did not evolve into a permanent organization.


2010s

The Albinism Fellowship of Australia, led by Dr. Shari Parker, initiated the World Albinism Alliance (WAA), leveraging the growing reach of the internet to connect organizations worldwide. While promising, this initiative also fell short of becoming a lasting organization.


2019

A new effort brought together Ikponwosa (I.K.) Ero, Michael McGowan, and Antoine Gliksohn to create a global alliance.


2020

In January 2020, an exploratory meeting in Paris brought together representatives from 23 countries, who unanimously voted to establish the Global Albinism Alliance (GAA).


2021

The GAA was officially registered, marking the beginning of a sustainable international network dedicated to supporting people with albinism.

OUR APPROACH & STRATEGY


We Advance Knowledge
& Understanding
of Albinism


We Advocate at the Global
Level to Improve the Lives of People Affected by Albinism


We Help Albinism Organizations Around the World Become Stronger & More Impactful

Albinism leaders from around the world posing for a group photo at the GlobalSkin side meeting, spring 2025.
Photo by Dominik Kučera

OUR VALUES

We are inclusive but we acknowledge and respect the diversity that exists within our community.


We believe strongly in the importance of collaboration to harness the collective strengths of all albinism organizations around the world.


We seek to build bridges to realize synergies between different stakeholders who serve persons with albinism.


We maintain and call for open and honest communication with and among albinism organizations.


We stand in solidarity with each other to address the most important inequities faced by persons with albinism around the world.


We ensure that in all our actions we remain informed by the best available evidence.


We respect our members' time and resources.


ANNUAL REPORTS

2024

OUR NEWS 

Read the latest on albinism: news, research, community stories
& how we’re working to build a world where people with albinism
enjoy the best possible quality of life.


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