SKIN CANCER IN PERSONS WITH ALBINISM
Persons with Albinism face a heightened vulnerability to the sun’s radiation, resulting in a dramatically increased risk of skin cancer.
30 to 40
AGE WHEN PERSONS WITH ALBINISM IN AFRICA OFTEN DEVELOP PREVENTABLE SKIN CANCER
1,000
TIMES MORE LIKELY FOR PERSONS WITH ALBINISM IN AFRICA TO DEVELOP SKIN CANCER.
Skin cancer is especially critical in low- and middle-income countries located in inter-tropical regions, where protective resources are scarce.
The Global Albinism Alliance is committed to changing this reality. We lead joint action worldwide to raise awareness about skin cancer among PWA, and to improve both early detection and effective treatment of preventable cancers.
OUR EFFORTS INCLUDE
Running awareness-raising campaigns to inform and educate communities, health professionals, and policymakers.
Engaging regularly with the United Nations and the World Health Organization to ensure PWA are represented in global health priorities.
Building and nurturing cross-stakeholder partnerships, uniting medical, human rights, and community actors.
Developing advocacy resources to strengthen the voice of albinism organizations globally.
Organizing the World Forum on Skin Cancer in Persons with Albinism, a pioneering platform for dialogue, knowledge exchange, and collaborative action.
RESEARCH ON SKIN CANCER
Research on skin cancer in persons with albinism remains limited, and reliable data on its prevalence and impact are scarce. This evidence gap hampers advocacy and the development of effective policies and programs.
To address this, the Global Albinism Alliance has launched initiatives to promote research and strengthen knowledge in this area. A key milestone was achieved in 2023 through a collaboration with the International Agency for Research on Cancer (IARC), the WHO’s specialized cancer agency, to advance international research and ensure PWA are included in the global fight against cancer.
OUR NEWS
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enjoy the best possible quality of life.
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