Uniting Albinism Organizations Globally
We help albinism organizations around the world be stronger and more impactful. Improve knowledge about albinism and advocate at the global level to improve the lives of people impacted by albinism.
150+
Albinism Organizations
under our umbrella
80+
Countries represented
4+
Years of Experience
Our Collaborations
GlobalSkin
The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is a unique global alliance, committed to improving the lives of patients worldwide.
Rare Diseases International
RDI is the global alliance of organizations representing people living with a rare disease or condition around the world.
World Skin Health Coalition
The World Skin Health Coalition was founded to help address the global challenges of dermatological diseases and to elevate skin health on the global health policy agenda.
UN Independent Expert on the Rights of Persons with Albinism
Ms. Muluka-Anne Miti-Drummond (Zambia) is the United Nations mandate holder since 1 August 2021, following Ms. Ikponwosa "IK" Ero.
International Service for Human Rights
ISHR is an independent NGO whose mission is to support human rights defenders, strengthen human rights systems, as well as lead and participate in coalitions for human rights change.
International League of Dermatological Societies
ILDS is the global umbrella organisation for professional dermatology organisations.
Vision for Tomorrow
VFT is committed to funding promising research on aniridia and albinism and supporting families affected by these challenging genetic conditions.
HPS Network
The HPS Network is a US nonprofit organization. It is the only patient group worldwide dedicated to Hermansky-Pudlak Syndrome (HPS), the main syndromic form of albinism.
GlobalSkin
The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is a unique global alliance, committed to improving the lives of patients worldwide.
ILDS - International League of Dermatological Societies
We work to deliver projects that have a meaningful impact on the lives of dermatology patients around the world, particularly those in under-served communities
IFPCS - International Federation of Pigment Cell Societies
The IFPCS is an international organization devoted to the study of various aspects of the pigment cells.
Under The Same Sun
Through education and advocacy, we’re working towards a future where people with albinism can take their place throughout society
Open Society Foundations
Every year, the Open Society Foundations give grants to a diverse array of groups and individuals who promote our values—through a unique network that is guided by local voices and global expertise.